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A Letter From My MDA Parole Officer – Why You Should Donate

Jeni Stepanek speaks during a tribute to her son, Mattie J. T. Stepanek, who died at 13 in June 2004 from Mitochondrial Myopathy, at the 39th Annual Jerry Lewis MDA Labor Day Telethon at CBS Television City on September 5, 2004 in Los Angeles, California. (Photo by Kevin Winter/Getty Images)

I mentioned in an earlier post that I’m going to jail for the Muscular Dystrophy Association and need you to help raise my bail. Don’t worry if you can’t donate a thousand dollars, every little bit helps. In fact, you can donate as little as $30 on my online donation page.

But don’t do it because I’m asking you to. Do it because the kids with MD need your help to find a cure.

We take for granted the ability to stand and walk, the ability to jump up and run to the fridge for ice cream on a hot afternoon, or the ability to grab our bicycle and go for a ride. We take these things for granted. But not everyone does.

Those stricken with Muscular Dystrophy face obstacles that probably haven’t even crossed our minds. Modern medical science is making great strides toward isolating the cause of this debilitating disease and finding a cure. In the mean time, those dealing with Muscular Dystrophy could use a little help. Your donation to the Muscular Dystrophy Association can make an enormous difference in the life of a child with Muscular Dystrophy.

On Thursday, August 4th, I will go to the MDA Lockup. I’ll be calling on friends and people who have foolishly given me their phone numbers to try to raise my “bail money.” Who knows, I, or someone else that you know, may be calling on you!

If you still aren’t sure if you should support the Muscular Dystrophy association, read the e-mail below. I received it from my “Parole Officer”, Daniel York.

Sometimes it is hard to convey just how vital MDA’ s mission is. I want to share a story with you that was recently shared with me from a co-worker in Waco, TX.

What do you tell a little boy who asks you for hope?

Earlier this year, I had the honor of addressing a group of MDA supporters, but before I spoke, they heard from Jacob, an 11 year old boy with Becker’s muscular dystrophy.  He told them all about how much getting to go to camp means to him and how much fun he has there with all the other kids who have MD.

When he finished, I proceeded to tell the group about all the wonderful advances in research that MDA has made recently, including the treatment we have for Pompe’s disease and how it had transformed the life of a dear friend of mine.  At this point, Jacob pulled on the corner of my sleeve to get my attention and asked me,

“When will they have a treatment for my disease?”

I choked up and almost couldn’t finish speaking because there isn’t a treatment yet for Jacob’s disease.  What do you tell a little boy who asks you for hope?  All I could do was to encourage everyone in that room to do their best to help us fund the research for Jacob and all the other kids like him. And now I’m asking you, please do your best so that hopefully one day soon, I will be able to tell Jacob that we can help him, thanks to you and all the other people who cared enough to say, “Yes, I will help.”

This is a reminder to us all that what we do for MDA can and does make a difference. Your help does make help and  hope possible.

I look forward to seeing you at the Lock-Up on Thursday, August 4th.


Daniel York

Executive Director

Seriously, how do you say no to that?

Whether you make a donation to raise my bail, or some other MDA Jailbird that you happen to know, thank you.

Dave D.

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